Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
Studying stigmatization and status disclosure among people living with HIV/AIDS in Russia Through online health communities. / Dudina, Victoria; Tsareva, Anna.
Internet Science - 5th International Conference, INSCI 2018, Proceedings. ed. / Svetlana S. Bodrunova. Springer Nature, 2018. p. 15-24 (Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics); Vol. 11193 LNCS).Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
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TY - GEN
T1 - Studying stigmatization and status disclosure among people living with HIV/AIDS in Russia Through online health communities
AU - Dudina, Victoria
AU - Tsareva, Anna
N1 - Conference code: 5th
PY - 2018/1/1
Y1 - 2018/1/1
N2 - Taking into account that HIV/AIDS is highly stigmatized in Russia, online health communities play an important role in providing emotional and informational support to people living with HIV/AIDS. Online health communities can also be considered as an important way of data collection. The purpose of the study was to examine how people living with HIV/AIDS discuss in Internet disclosure of their HIV-status in the context of stigmatization. Data were collected through the web site “Forum for people living with HIV/AIDS”. The processing and analysis of data was carried out in QDAS NVivo. Interpretations of the disease, reported by forum users, vary from total rejection to attempts to justify themselves in front of others. The most negative response to disease reported by users is the concealment of one’s status from sexual partners. There are clearly manifested differences between people who have recently learned about their illness and those who have lived with HIV/AIDS for a long time and have developed some strategies for resistance to stigma and for coping with the disease. Based on the data analyzed, we can hypothesize that the more user perceive the illness as a “punishment” for inappropriate behavior the more difficulties she or he experiences with the disclosure of HIV status. The peer support plays an important role in the acceptance of status and in the reduction of internalized stigma.
AB - Taking into account that HIV/AIDS is highly stigmatized in Russia, online health communities play an important role in providing emotional and informational support to people living with HIV/AIDS. Online health communities can also be considered as an important way of data collection. The purpose of the study was to examine how people living with HIV/AIDS discuss in Internet disclosure of their HIV-status in the context of stigmatization. Data were collected through the web site “Forum for people living with HIV/AIDS”. The processing and analysis of data was carried out in QDAS NVivo. Interpretations of the disease, reported by forum users, vary from total rejection to attempts to justify themselves in front of others. The most negative response to disease reported by users is the concealment of one’s status from sexual partners. There are clearly manifested differences between people who have recently learned about their illness and those who have lived with HIV/AIDS for a long time and have developed some strategies for resistance to stigma and for coping with the disease. Based on the data analyzed, we can hypothesize that the more user perceive the illness as a “punishment” for inappropriate behavior the more difficulties she or he experiences with the disclosure of HIV status. The peer support plays an important role in the acceptance of status and in the reduction of internalized stigma.
KW - Online health community
KW - Status disclosure
KW - Stigmatization of people living with HIV/AIDS
UR - http://www.scopus.com/inward/record.url?scp=85055838434&partnerID=8YFLogxK
U2 - 10.1007/978-3-030-01437-7_2
DO - 10.1007/978-3-030-01437-7_2
M3 - Conference contribution
AN - SCOPUS:85055838434
SN - 9783030014360
T3 - Lecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
SP - 15
EP - 24
BT - Internet Science - 5th International Conference, INSCI 2018, Proceedings
A2 - Bodrunova, Svetlana S.
PB - Springer Nature
T2 - 5th International Conference on Internet Science, INSCI 2018
Y2 - 24 October 2018 through 26 October 2018
ER -
ID: 52430012