Research output: Contribution to journal › Article › peer-review
Concealing an HIV-Positive Status in Medical Settings : Discussions in Russian Online Forums. / Dudina, Victoria I.; King, Elizabeth J.; Tsareva, Anna V.
In: Qualitative Health Research, Vol. 30, No. 9, 01.07.2020, p. 1379-1391.Research output: Contribution to journal › Article › peer-review
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TY - JOUR
T1 - Concealing an HIV-Positive Status in Medical Settings
T2 - Discussions in Russian Online Forums
AU - Dudina, Victoria I.
AU - King, Elizabeth J.
AU - Tsareva, Anna V.
PY - 2020/7/1
Y1 - 2020/7/1
N2 - Concealment of diagnosis is one of the most important manifestations of HIV-related stigma, which is a major barrier to addressing the growing HIV epidemic in Russia. The purpose of our research was to understand how and why people living with HIV (PLHIV) conceal their HIV status in medical settings. We analyzed data collected through two major Russian online forums for PLHIV. We found that concealing HIV status in medical settings is connected to worries about breach of confidentiality, denial of quality medical care, and judgment from health care providers. PLHIV discuss the dilemmas between risks of disclosing and potential legal or health-related consequences of concealment. We identified strategies that PLHIV use to conceal their status including falsifying medical records, hiding test results, and offering payments to doctors. Understanding status concealment is important for building more effective interactions between health care providers and PLHIV, at both the individual and the institutional levels.
AB - Concealment of diagnosis is one of the most important manifestations of HIV-related stigma, which is a major barrier to addressing the growing HIV epidemic in Russia. The purpose of our research was to understand how and why people living with HIV (PLHIV) conceal their HIV status in medical settings. We analyzed data collected through two major Russian online forums for PLHIV. We found that concealing HIV status in medical settings is connected to worries about breach of confidentiality, denial of quality medical care, and judgment from health care providers. PLHIV discuss the dilemmas between risks of disclosing and potential legal or health-related consequences of concealment. We identified strategies that PLHIV use to conceal their status including falsifying medical records, hiding test results, and offering payments to doctors. Understanding status concealment is important for building more effective interactions between health care providers and PLHIV, at both the individual and the institutional levels.
KW - communication
KW - confidentiality
KW - disclosure
KW - health care
KW - HIV/AIDS
KW - internet
KW - qualitative
KW - Russia
KW - stigma
KW - thematic analysis
UR - http://www.scopus.com/inward/record.url?scp=85086703990&partnerID=8YFLogxK
U2 - 10.1177/1049732320914574
DO - 10.1177/1049732320914574
M3 - Article
C2 - 32558635
AN - SCOPUS:85086703990
VL - 30
SP - 1379
EP - 1391
JO - Qualitative Health Research
JF - Qualitative Health Research
SN - 1049-7323
IS - 9
ER -
ID: 60533862