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Concealing an HIV-Positive Status in Medical Settings : Discussions in Russian Online Forums. / Dudina, Victoria I.; King, Elizabeth J.; Tsareva, Anna V.

In: Qualitative Health Research, Vol. 30, No. 9, 01.07.2020, p. 1379-1391.

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Dudina, Victoria I. ; King, Elizabeth J. ; Tsareva, Anna V. / Concealing an HIV-Positive Status in Medical Settings : Discussions in Russian Online Forums. In: Qualitative Health Research. 2020 ; Vol. 30, No. 9. pp. 1379-1391.

BibTeX

@article{81ec6a7bcb3e4bc8944b7e479660ce29,
title = "Concealing an HIV-Positive Status in Medical Settings: Discussions in Russian Online Forums",
abstract = "Concealment of diagnosis is one of the most important manifestations of HIV-related stigma, which is a major barrier to addressing the growing HIV epidemic in Russia. The purpose of our research was to understand how and why people living with HIV (PLHIV) conceal their HIV status in medical settings. We analyzed data collected through two major Russian online forums for PLHIV. We found that concealing HIV status in medical settings is connected to worries about breach of confidentiality, denial of quality medical care, and judgment from health care providers. PLHIV discuss the dilemmas between risks of disclosing and potential legal or health-related consequences of concealment. We identified strategies that PLHIV use to conceal their status including falsifying medical records, hiding test results, and offering payments to doctors. Understanding status concealment is important for building more effective interactions between health care providers and PLHIV, at both the individual and the institutional levels.",
keywords = "communication, confidentiality, disclosure, health care, HIV/AIDS, internet, qualitative, Russia, stigma, thematic analysis",
author = "Dudina, {Victoria I.} and King, {Elizabeth J.} and Tsareva, {Anna V.}",
year = "2020",
month = jul,
day = "1",
doi = "10.1177/1049732320914574",
language = "English",
volume = "30",
pages = "1379--1391",
journal = "Qualitative Health Research",
issn = "1049-7323",
publisher = "SAGE",
number = "9",

}

RIS

TY - JOUR

T1 - Concealing an HIV-Positive Status in Medical Settings

T2 - Discussions in Russian Online Forums

AU - Dudina, Victoria I.

AU - King, Elizabeth J.

AU - Tsareva, Anna V.

PY - 2020/7/1

Y1 - 2020/7/1

N2 - Concealment of diagnosis is one of the most important manifestations of HIV-related stigma, which is a major barrier to addressing the growing HIV epidemic in Russia. The purpose of our research was to understand how and why people living with HIV (PLHIV) conceal their HIV status in medical settings. We analyzed data collected through two major Russian online forums for PLHIV. We found that concealing HIV status in medical settings is connected to worries about breach of confidentiality, denial of quality medical care, and judgment from health care providers. PLHIV discuss the dilemmas between risks of disclosing and potential legal or health-related consequences of concealment. We identified strategies that PLHIV use to conceal their status including falsifying medical records, hiding test results, and offering payments to doctors. Understanding status concealment is important for building more effective interactions between health care providers and PLHIV, at both the individual and the institutional levels.

AB - Concealment of diagnosis is one of the most important manifestations of HIV-related stigma, which is a major barrier to addressing the growing HIV epidemic in Russia. The purpose of our research was to understand how and why people living with HIV (PLHIV) conceal their HIV status in medical settings. We analyzed data collected through two major Russian online forums for PLHIV. We found that concealing HIV status in medical settings is connected to worries about breach of confidentiality, denial of quality medical care, and judgment from health care providers. PLHIV discuss the dilemmas between risks of disclosing and potential legal or health-related consequences of concealment. We identified strategies that PLHIV use to conceal their status including falsifying medical records, hiding test results, and offering payments to doctors. Understanding status concealment is important for building more effective interactions between health care providers and PLHIV, at both the individual and the institutional levels.

KW - communication

KW - confidentiality

KW - disclosure

KW - health care

KW - HIV/AIDS

KW - internet

KW - qualitative

KW - Russia

KW - stigma

KW - thematic analysis

UR - http://www.scopus.com/inward/record.url?scp=85086703990&partnerID=8YFLogxK

U2 - 10.1177/1049732320914574

DO - 10.1177/1049732320914574

M3 - Article

C2 - 32558635

AN - SCOPUS:85086703990

VL - 30

SP - 1379

EP - 1391

JO - Qualitative Health Research

JF - Qualitative Health Research

SN - 1049-7323

IS - 9

ER -

ID: 60533862